Drawing from clinical research and real life expertise, Kristen Kauke, LCSW, will help parents and caregivers explore the following questions: What are delicate and appropriate ways to talk to my child about anaphylaxis? How and when should I handle the issue of fatality with finesse? What are the surprising ways my child might be protecting me? How do we maintain a proper perspective? How do we live well?
Using American Sign Language with any infant or toddler has numerous benefits, but signing with one who has food allergies adds a new level of security and confidence for both the child(ren) and parents. During this presentation, participants will hear one family’s experience with using sign language with their food allergy children and learn about the benefits of using sign language with their food allergy child.
What Every Parent Must Know About Managing Food Allergies at School
On October 30, 2013, the CDC published National Guidelines for Managing Food Allergies in Schools and Early Care and Education Programs.
Gina Clowes, FARE's Director of Education, will review important highlights of these guidelines including:
- Why the CDC recommends restricting allergens from the classroom.
- What are "accommodations" and how does a parent know what to ask for?
- What is a Section 504 plan (or other accommodation plan) and does every child at risk for anaphylaxis need one?
- Why a Food Allergy Action plan is not enough to ensure inclusion.
- What are the Federal laws that protect children with food allergies .
- The CDC's "Recommended Practices" for Safety and Inclusion.
Join Scott Sicherer as he reviews every aspect of food allergies. He will explore life-threatening food allergies, single to multi food group allergies, how to prevent exposure and cross-contact, as well as, what to do if you suspect someone is having an allergic reaction.
In this session, Linda Herbert and Mary Beth Feuling will discuss both the nutritional and mental health aspects of living with food allergy and how it applies to daily life. You will learn about nutrition, how to manage “may contain statements” and food prepared by others, and a review of emergency preparedness. They will review the definition of a mental health disorder as well as identify and define anxiety-related disorders that are most commonly observed among youth and young adults with food allergies. They will also discuss food allergy management behaviors that may resemble eating disorders, and provide real life examples to help determine when it is appropriate to see support from a mental health provider.
This interactive session will be led by Dr. Paul Bryce, a scientist working in food allergy research, and is aimed at helping to educate patients and family members about the biology behind food allergy. Do you know what cells are involved? Do you know why we have evolved this allergic response? What is actually happening during an allergic reaction and what molecules are driving it? Do you know how the current treatments work? By the end of this session, participants should have a clearer understanding of the biology of food allergy, as well as the terms and treatments used by their doctors and researchers.
This session will focus on the basics of navigating the laws guaranteeing equal access to education for students with disabilities, specifically severe, disabling food allergies. The presentation will stress K-12 education and will touch on issues relevant to post-secondary students with severe food allergies. Particular attention will be paid to the definition of disability since the 2010 changes to the Americans with Disabilities Act; the process for serving students with disabilities; and school districts' responsibility to identify, evaluate, and place students with disabilities.
In this workshop for teens, participants will write short pieces of expressive writing about their experiences. The workshop will include brief lectures, expressive writing, short video clips, role playing, and small and large group discussion. Exercises and approaches detailed in Louise DeSalvo’s Writing as a Way of Healing (1999) and James W. Pennebaker’s Writing to Heal (2004) will be used.
Get comfortable and role play (voluntary) several food allergy communication situations. Learn how to prepare yourself to advocate your own behalf or of your child's. Role play situations such as speaking to the classroom parent about parties; talking with a family member about a wedding and addressing a problem that took place.
Many people are creating innovative programs where children with food allergies can participate as “normal” children. Camp Blue Spruce is an example of one mom’s efforts to give her son and other children with life-threatening food allergies an experience that would not be available to them through the normal venues. This panel consists of representatives from a variety of camps, including camps that are not completely allergy-free but accommodate allergies, and allergy-free camps like Camp Blue Spruce.
A presentation on the issues related to students attending school who have food allergies and how a parent can partner with their school to ensure their child's safety. Overview includes discussion on 'peanut free' issues, classroom safety, and availability of epinephrine and trained staff who can act to save a child's life.
The onset, management, and possible treatments for food allergies are underpinned by complex biological phenomena that are incompletely understood by scientists and clinicians. The aim of this session is to help individuals dealing with food allergies: 1) understand the gap between scientific consensus and the hope of new scientific findings; 2) understand what science is and what it is not, and thus why the standard of care is what it is; and 3) provide specific strategies to avoid getting duped by misinformation.
Whether you live in a community that does not currently have a support group or want to help improve one that is already in existence, this workshop will give you tools to take home and immediately get things moving in a positive direction.
This lecture will cover the basic science of an allergic reaction and characteristics of individuals with multiple food allergies, including associated conditions. We will discuss the impact of multiple food allergies on the food allergic individual and their family, with special emphasis on siblings. Discussion of management challenges at home, in the kitchen and in school will be identified. We will conclude with a brief overview of studies that are here or on the horizon focusing particularly on non-peanut or multiple food allergies.
Learn how to order safe meals whether in restaurants close to home or abroad with confidence. Discover recent market research trends and eating out considerations such as hidden ingredients and food preparation techniques.
Food Allergy Research & Education is thrilled to announce a new 5-hour workshop with Pete Wright, the nationally known attorney and founder of Wrightslaw.com, the #1 school advocacy website on Sunday June 22, 2014.
Pete has created a workshop for parents of children with food allergies designed to help them learn about their children’s rights to safety and inclusion at school.
In this comprehensive workshop, you will learn:
In addition to Pete’s comprehensive training, each participant will receive a hardcopy of Pete’s bestselling book From Emotions to Advocacy as well as a specially prepared CD Rom that contains a wealth of resources including:
This panel will discuss accommodations and training already being done on some campuses, as well as what students and parents should know as they start the college process.
Practical information shared will broaden parents’ knowledge and understanding of current standards for comprehensive food allergy management practices at school, based on recent advances in this area. Evidence-based recommendations for developing procedures that address both the physical and emotional well-being of the child will be explored. A summary of relevant laws that support food allergy management efforts will be discussed in order to facilitate a practical understanding of how they may be interpreted and applied in the school setting. Attendees of this session will receive a copy of Jan's book, "Food Allergies: A Recipe For Success At School".
This seminar will address the ambiguous loss and grief process for families who live with food allergies. We will identify the many losses associated with living with food allergies and learn about the grief process experienced by the entire family unit. Finally, we will explore strategies of integrating the loss into our lives and how to care for ourselves in the process.
Learn food allergy tips to help you eat on the go and travel including fast food, restaurants, schools and more. Discover mobile apps, ebooks and other resources to have at your fingertips to always feel safe and empowered regardless of your destination.
Tracy will be leading this presentation to discuss a real-life model recently executed at LTES, a K-8 school. In partnering with a trusted and proven allergy-free brand, a national cafeteria service provider, and school officials, a taste-testing at the cafeteria was offered for the first time, open to ALL students. This was an opportunity for a school community to embrace that allergy-free can be delicious, a healthier alternative, and that students with food allergies have delicious options to share with their friends!
Jacqueline Church will share her experiences as being someone who could once eat whatever she pleased, to developing multiple food allergies. She will share with the audience, how she learned to cope with the dangers and inconveniences of food allergies and other allergies, tips for cooking and eating out/eating with others.
After her younger brother’s diagnosis of severe food allergies to peanuts and tree nuts, Nicole Davessar has learned to live with a food allergy without actually having one herself. Learn how she took charge to spread knowledge and awareness in her school and community about food allergies. With this panel, Nicole hopes to inspire and empower teenagers to make a difference by spreading food allergy awareness to the students and staff at their own school.